A few weeks ago we received a letter from one family, raising a three-years-old boy with myotubular myopathy. This form of myopathy is very severe and rare, and he is probably the only child in Lithuania suffering from this disease. Parents dedicate all the child’s money for his development and different physiotherapies. Little Vilius has tracheostomy, gastrostoma, and lung ventilation during the night time. It is not easy for the parents, especially at the moment, because Vilius started to loose weight. So, it’s important to support Vilius with the special food. Our 500 Euro support is for this special food and special nursing tools. We wish the family to stay strong!
http://viltiesliepsna.lt/wp-content/uploads/2018/09/40826233_1861915240582380_5646355708891889664_n.png 256 500 admin http://viltiesliepsna.lt/wp-content/uploads/2019/01/LOGO-VL_Fleimiai_eilute-300x153.jpg admin2020-03-25 07:58:272020-03-25 07:58:27Support for Vilius